We are Free!!!! From the Hospital anyhow! We must remain as outpatients for a few more days to make sure she remains stable. She had a bit of a rough night...woke up several times with pain and elevating her more in bed seemed to help that though. She has been very active today and so much more limber and mobile then before! She showed relatively no pain around the area earlier in the day either. This afternoon when I changed the dressing, I noticed a hole, possibly from the previous drain, but it's been leaking yellow stuff....doesn't smell off, but I'm a bit concerned....It wasn't painful at the time thankfully. Her skin around the area was nearly purple colored...also not as painful then. This evening she has alot of tenderness of the skin around the whole area...I'm hoping maybe just this being the first bandage change that she has some tenderness from it and it's not something more. That would be our luck! I'm so paranoid anything and everything will stop us from finally getting home! lol I have to change the dressing every day as well as flush the drain 3x a day, so I can monitor it easily that way and go from there. She'll keep this drain in for 6 weeks, then we are back up in Edmonton to do this all over again. During those 6 weeks she will be restricted. She won't be able to participate in gym, recess, swimming etc. No running with risk of collisions that could catch the hanging drain under her shirt and rip it either out of the skin its stitched into, or pull it out of it's placement, causing the bile to leak and drain in to other parts of her body or cause a blockage etc... So it will be a boring next 6 weeks for her :( I also noticed after the first procedure, they never asked us to remove her earrings. I forgot until I saw them taped when she came out...and then I saw why they say to remove them....they somehow must of caught a tube or something on one and ripped it nearly from her ear....she has quite the long hole/slit now that's scabbing up alot and trying to heal. Oddly enough they still didn't ask to have them removed the second time around either. Will remember that for next time! lol Fortunately it's caused her no pain unless touched! lol I do have to be careful of infection though, she's high risk of infections becoming uncontrollable with being immunosuppressed.
I have been so busy, hauling things in from the car, unpacking, doing laundry, getting food, eating, organizing everything, organizing her huge amount of daily supplies to care for her bile drain, and finally showering myself and giving feeny a sponge bath and washing her hair....a long task in itself to be so careful around her whole one side to not get it the bandages and site wet. I have had no time to try to keep up with all the numerous messages we've been receiving! I'm so sorry! My days will only be getting busier as well....I'm ALMOST missing the isolation of the hospital....I was busy there too, but not this busy, and soon to be much busier!! So I apologize in advance if I'm taking a long time to reply, or replies are short! Or if I don't reply...I suspect despite my best efforts and literally hours upon hours on FB/email/webpage each day I seem to miss some! Feeny and I appreciate and love all the support and wonderful messages!! It makes such a difference to her to have messages sent to her that makes her laugh and coo over them! THANK YOU EVERYONE for doing so much for my little girl and making her so happy during such a hard time for her!
I have been so busy, hauling things in from the car, unpacking, doing laundry, getting food, eating, organizing everything, organizing her huge amount of daily supplies to care for her bile drain, and finally showering myself and giving feeny a sponge bath and washing her hair....a long task in itself to be so careful around her whole one side to not get it the bandages and site wet. I have had no time to try to keep up with all the numerous messages we've been receiving! I'm so sorry! My days will only be getting busier as well....I'm ALMOST missing the isolation of the hospital....I was busy there too, but not this busy, and soon to be much busier!! So I apologize in advance if I'm taking a long time to reply, or replies are short! Or if I don't reply...I suspect despite my best efforts and literally hours upon hours on FB/email/webpage each day I seem to miss some! Feeny and I appreciate and love all the support and wonderful messages!! It makes such a difference to her to have messages sent to her that makes her laugh and coo over them! THANK YOU EVERYONE for doing so much for my little girl and making her so happy during such a hard time for her!