We arrived home sunday night after a long week with many ups and downs in edmonton. It was a relief to finally be home, and in good health with the hopes of some things normalizing. I know with her it'll never be perfect health and we will always face challenges and even this bile duct issue may become a recurrence; but for a bit a break would be wonderful. lol
While she was in outpatient status I monitored her temps and she would get slightly elevated temps but nothing major and didn't develop into anything or needed medications to drop. Her cough has remained...and I no longer believe the anesthetic cough diagnosis they gave me. Her eating habits varied and wasn't as much as she usually ate, but still a good appetite for any other child lol. They dropped her being on ursodial which helps in her amount of bile production, and decreased the magnesium she was taking down to 500mg a day. We'll have to monitor thru bloodworks that her levels remain stable with the change. The amount of meds she takes now seems so little with all the recent reductions in the last month! lol I always get a slight panicky feeling at first glance thinking somethings missing! lol
It has been such a relief not dealing with the drain, flushing it 3x a day, changing the bandaging etc! I wake up in the mornings thinking I still need to tho, it'll take awhile to break my mind of the habit and routine we developed over the last few months :)
We enjoyed our day at home doing nothing but resting, laundry, unpacking, organizing etc before starting school and work the next day (tuesday). I made plans to go back to work and got her stuff ready for school. Life was going to return to normal(ish) for us, maybe I'd finally get a full month of work in finally! lol
Unfortunately at 8:30pm as she was heading to bed she was hit suddenly with a headache and nausea.....I had hoped maybe it was just being tired or something....but I had noted she hadn't eaten dinner or any food of any real substance since noon....just small light snacks then nothing for the evening. At 9:30 she woke up and started vomiting.... :( She suffered a painful headache and bad dry heaving for the next couple hours...I ended up giving her a pain med for the headache to help ease that pain so she could sleep. It thankfully worked and was one that wouldn't mask a fever if one developed.
So far no fever and it's 2am. I'm hoping this means it's a viral bug attacking her system and not sepsis or anything else liver related....I am so worn out with all these out of town trips and living and life in constant chaos, and most of all her suffering constantly! I'm debating packing our bags in case she does spike a fever and an ER trip that'd most likely result in us being sent to calgary or edmonton... But I don't need to take her until a fever occurs to indicate an infection of some sort could be the culprit. So far she's not showing any of her typical symptoms of sepsis thankfully and seems to be just viral symptoms. We'll see how the night goes...it'll be a long night for me checking her constantly for fever and being ready to leave if so...
So...normalicy hasn't quite returned for us yet.... we'll try again another day?? Lol
While she was in outpatient status I monitored her temps and she would get slightly elevated temps but nothing major and didn't develop into anything or needed medications to drop. Her cough has remained...and I no longer believe the anesthetic cough diagnosis they gave me. Her eating habits varied and wasn't as much as she usually ate, but still a good appetite for any other child lol. They dropped her being on ursodial which helps in her amount of bile production, and decreased the magnesium she was taking down to 500mg a day. We'll have to monitor thru bloodworks that her levels remain stable with the change. The amount of meds she takes now seems so little with all the recent reductions in the last month! lol I always get a slight panicky feeling at first glance thinking somethings missing! lol
It has been such a relief not dealing with the drain, flushing it 3x a day, changing the bandaging etc! I wake up in the mornings thinking I still need to tho, it'll take awhile to break my mind of the habit and routine we developed over the last few months :)
We enjoyed our day at home doing nothing but resting, laundry, unpacking, organizing etc before starting school and work the next day (tuesday). I made plans to go back to work and got her stuff ready for school. Life was going to return to normal(ish) for us, maybe I'd finally get a full month of work in finally! lol
Unfortunately at 8:30pm as she was heading to bed she was hit suddenly with a headache and nausea.....I had hoped maybe it was just being tired or something....but I had noted she hadn't eaten dinner or any food of any real substance since noon....just small light snacks then nothing for the evening. At 9:30 she woke up and started vomiting.... :( She suffered a painful headache and bad dry heaving for the next couple hours...I ended up giving her a pain med for the headache to help ease that pain so she could sleep. It thankfully worked and was one that wouldn't mask a fever if one developed.
So far no fever and it's 2am. I'm hoping this means it's a viral bug attacking her system and not sepsis or anything else liver related....I am so worn out with all these out of town trips and living and life in constant chaos, and most of all her suffering constantly! I'm debating packing our bags in case she does spike a fever and an ER trip that'd most likely result in us being sent to calgary or edmonton... But I don't need to take her until a fever occurs to indicate an infection of some sort could be the culprit. So far she's not showing any of her typical symptoms of sepsis thankfully and seems to be just viral symptoms. We'll see how the night goes...it'll be a long night for me checking her constantly for fever and being ready to leave if so...
So...normalicy hasn't quite returned for us yet.... we'll try again another day?? Lol