Feeny came out about 10:30 am from her procedure this morning. She only suffered a mild case of psychosis this time thankfully and nothing like last time. And- she is bile tube drain free! Once she heals she can go swimming, camping etc! Tho it is out for good due to unfortunate circumstances... turns out the last one wasn't in right and was too far in, had a lot of blockages and they said it had actually been completely useless the whole time, and her bile duct managed to stay open on its own thankfully without the drain doing so for it. That may explain why she was having the issues she did this whole time with it! They've also discovered her bile is abnormal and too thick, which they think may relate to why she built up the bile sludge like she had with the narrowing of the duct. They want to look into metabolic issues to try and figure it out and hopefully something can be done so we don't have to deal with the sepsis and bile drain stuff all over again.
Feeny was doing so well in the procedure they were going to release her from hospital same day! But as soon as she came out of the procedure she was suffering from a massive headache that wouldn't go away. It took 4.5 hrs to reach a dr to get permission to give her tylenol....in that time her symptoms worsened...the dr saw her but wasn't concerned as I was. By then she was flushed and feverish looking and hot feeling, but her temps were normal, her headache was so severe she couldn't speak above a whisper and only very slowly, and she wouldn't eat. They gave her tylenol and an hour afterwards she spiked a fever despite it, her breathing had become even more laboured and her heart rate was high despite her extreme lethargy and sleeping . while trying to figure out what to do she started to develop stiffness in her body and inability to move the one side of her body beyond wiggling slowly, but no bending or lifting abilities. Her temperature continued to rise every 10 mins when they'd check it. They had said the tube they removed looked horrid, as if it was in there far longer then it was. with a bad flaky material around it. My suspicion before the fever was sepsis, and as the other symptoms rapidly followed with fever, they agreed. Most likely from that tube. They drew blood, did blood cultures that'll show results within 48hrs and put her on a strong broad rang antibiotic, the same as they've always used to treat her for sepsis. I don't understand why they didn't give her an antibiotic as a preventative as they do even to clean her teeth for this....but now we will be in hospital at least another 48 hrs doing treatments. If she has responded well and the bacteria culture is identified and the antibiotics are the right ones for it, they may drop her down to oral antibiotics and possibly let her go home or to outpatient status then.
So far after one treatment, she has started eating, headache reduced, she's able to stay awake, body mobility is back, and fever reduced, but hasn't fully broken yet. her heart rate and breathing is still a bit laboured and high, but not as bad as it was thankfully when her body was under so much duress from the poisoned blood flowing thru it.
I wonder how much a human body can endure septic attacks without sustaining some measure of permanent damage in the body and organs, and brain, as it's leading cause of death is organ failure or brain death from the bacteria in the blood killing it. I know when her first case of sepsis and close call of loosing her to it last year with the deadliest form of bowel bacteria to get into her blood stream was, they checked every couple hours for a week for neurological brain damage, waking her up through out the night even to do the tests...they were certain she would have sustained further damage then she did...we were lucky then. But she has had numerous cases of sepsis now...what does that mean for her body? All I know is I have one hell of a strong kid <3 She is my hero <3
Feeny was doing so well in the procedure they were going to release her from hospital same day! But as soon as she came out of the procedure she was suffering from a massive headache that wouldn't go away. It took 4.5 hrs to reach a dr to get permission to give her tylenol....in that time her symptoms worsened...the dr saw her but wasn't concerned as I was. By then she was flushed and feverish looking and hot feeling, but her temps were normal, her headache was so severe she couldn't speak above a whisper and only very slowly, and she wouldn't eat. They gave her tylenol and an hour afterwards she spiked a fever despite it, her breathing had become even more laboured and her heart rate was high despite her extreme lethargy and sleeping . while trying to figure out what to do she started to develop stiffness in her body and inability to move the one side of her body beyond wiggling slowly, but no bending or lifting abilities. Her temperature continued to rise every 10 mins when they'd check it. They had said the tube they removed looked horrid, as if it was in there far longer then it was. with a bad flaky material around it. My suspicion before the fever was sepsis, and as the other symptoms rapidly followed with fever, they agreed. Most likely from that tube. They drew blood, did blood cultures that'll show results within 48hrs and put her on a strong broad rang antibiotic, the same as they've always used to treat her for sepsis. I don't understand why they didn't give her an antibiotic as a preventative as they do even to clean her teeth for this....but now we will be in hospital at least another 48 hrs doing treatments. If she has responded well and the bacteria culture is identified and the antibiotics are the right ones for it, they may drop her down to oral antibiotics and possibly let her go home or to outpatient status then.
So far after one treatment, she has started eating, headache reduced, she's able to stay awake, body mobility is back, and fever reduced, but hasn't fully broken yet. her heart rate and breathing is still a bit laboured and high, but not as bad as it was thankfully when her body was under so much duress from the poisoned blood flowing thru it.
I wonder how much a human body can endure septic attacks without sustaining some measure of permanent damage in the body and organs, and brain, as it's leading cause of death is organ failure or brain death from the bacteria in the blood killing it. I know when her first case of sepsis and close call of loosing her to it last year with the deadliest form of bowel bacteria to get into her blood stream was, they checked every couple hours for a week for neurological brain damage, waking her up through out the night even to do the tests...they were certain she would have sustained further damage then she did...we were lucky then. But she has had numerous cases of sepsis now...what does that mean for her body? All I know is I have one hell of a strong kid <3 She is my hero <3